Join the Nemaline Myopathy Community 

as it Unites for A Weekend of Building Strength

A Foundation Building Strength is excited to announce the 3rd Annual A Weekend of Building Strength. Everyone around the world is encouraged to participate, by choosing an activity of their preference on April 28, 29 or 30, 2023, raising funds to support Nemaline Myopathy research and bringing us closer to life changing treatments. 

Together, we can made a significant impact!


STEPS TO PARTICIPATE:

1. Choose an activity that works for you and your friends and family. Examples include: walking/rolling, cycling, stretching, yoga class. Even a bake sale or lemonade stand!


2. Choose your date: April 28, April 29 or April 30, 2023, and your start time, along with the length of time for the activity. 

For example: April 29th from 2-4pm


3. Select "Become a Fundraiser" on this page to create your fundraiser. You can choose to fundraise in the following ways:  As an individual, Create a Team or Join a Team.


4. Customize your page with a personal photo and story, including the details of the event you have chosen.


5. Share the personal fundraising link with your friends, family, co-workers and anyone you'd like to encourage to join your team online and participate virtually or in-person.


6. Ask everyone to make a donation to your team to support our mission of finding treatments for Nemaline Myopathy.


7. If your event will be virtual, we recommend setting up a Zoom or Facebook Live link so everyone in your network can virtually participate together. 


8. Share your photos on social media and tag AFBS!


If you or your team members donate or raise $150 or more, you will receive one brand new AFBS shirt, which will be mailed to the lead fundraiser closer to the event date. These shirts can then be distributed to your supporters and team participants. 


First 50 donations of $150 receive a shirt!


If you need assistance or have any questions, please reach out to Jen Tozer at jtozer@buildingstrength.org.

Support a Fundraiser

Top Individuals

View all
View Top Individual - 'The Guillet's Byron Street Workout' fundraiser page using image
The Guillet's Byron Street Workout

The Guillet's Byron Street Workout has raised $7,970 out of their goal of $10,000

$7,970 raised (80%)
View Top Individual - 'Jonathan  Roberts ' fundraiser page using image
Jonathan Roberts

Jonathan Roberts has raised $0 out of their goal of $500

$0 raised (0%)

Top Teams

View all
View Top Team - 'Christopher’s crew' team page using image
Christopher’s crew

Christopher’s crew has raised $0 out of their goal of $1,000

$0 raised (0%) 1 member

Campaign Activity

See who supports your cause and what they have to say about it!

T

The Merritt Family Living Trust donated $250.00

2 years ago
P

Piyush Saraogi donated $524.00

So bummed to miss this great event. All of us will be there at the next event for sure. 

2 years ago
D

Dara Knoblock donated $100.00

2 years ago
R

Robert Lindstrom donated $52.40

2 years ago
N

Nicole Thom donated $300.00

Strong Work Guillet’s

2 years ago