Giving Tuesday 2022 has raised $35,304 out of their goal of $20,000
Support AFTD's Mission on #GivingTuesday
A donation of $1,000 can support cutting-edge research initiatives to foster earlier diagnosis and the development of treatments.
A donation of $500 can fund a Comstock Respite, Quality of Life, or Travel grant for a person diagnosed or a care partner.
From Hope to Action to #EndFTD on Giving Tuesday
James Staten, who is living with FTD, joins thousands more donors and volunteers in taking action to #endFTD. Read more about James's story below.
As we commemorate 20 years of serving our community, we are working together to improve the quality of life of people with FTD - the most common dementia under 60 - and to advance research toward treatments and a cure.
This #GivingTuesday, you can join James and so many others who are committed to ensuring that no one faces FTD alone.
Together, we can improve the journey for the next family.
Together, we can bring hope to action to #endFTD.
Racing to Raise FTD Awareness: James's Story
“It means so much to me to run with AFTD. I know that I am helping more people learn about FTD and I hope I can be a help to researchers, because my wish is for this disease to go away.”
– James Staten
In 2018, James Staten – a leader in business infrastructure technology, prolific writer, and speaker at numerous conferences – had difficulty recalling certain words and forming sentences. He also had frequent headaches and was increasingly troubled by what he describes as “word failure.”
While doctors initially attributed his symptoms to work-related stress, James and his wife Reesa continued to search for an answer to explain his worsening symptoms. Following two years of specialist visits, James was diagnosed with semantic variant primary progressive aphasia in 2020.
Always an avid runner and biker, James relies on exercise and a healthy diet to help improve his daily quality of life. “My brain feels better when I bike or run. I enjoy biking with friends – sometimes we’ll go 40 to 50 miles – and running in Sacramento and the Bay Area.”
James’s passion for exercising is mirrored by his commitment to participating in FTD research and raising awareness as he travels across the country to compete in marathons.
“When I tell people about this disease, I want them to know how it affects me. I want them to know it’s PPA that’s causing me to not be able to remember something or say what I want to.”
On November 20, James ran the 2022 Philadelphia Marathon – his 71st race - sharing his experience living with FTD while raising funds to support AFTD’s mission.
Reesa & James Staten at the 2021 Dallas Marathon
Campaign Activity
Thank you for turning hope into action to #endFTD on this #GivingTuesday.