Kim Runs the Philadelphia Marathon-2

Why Kim is Running


"I was not born a "runner". While I was always into sports, you were more likely to find me on the soccer field than the track!  One summer morning in 2006, all of that changed. For some reason (I am still not sure why), I decided to put on my sneakers and go for a jog.  As I ran along the Hudson River, I watched the sun rise over the Manhattan skyline. It was beautiful.  The feeling I had was simply indescribable. The air, the beauty, the freedom - I had never felt anything like it. Needless to say, I was hooked. Later that week, I signed up for the New York City Half Marathon.  Multiple half-marathons, full- marathons, triathlons, a half-iron man, and an ultra-marathon later, I am still running.

Fast forward to several years ago. My oldest daughter was a student at Cynwyd Elementary School when we learned of Calliope Joy and her wonderful family.  My daughter asked to raise money to promote awareness of Calliope Joy's condition. By selling necklaces, bracelets, and keychains, she did just that.  My daughter was even given the opportunity to be a judge in Cal's Cupcake Challenge.  We have gotten to know this wonderful family and have always kept them in our minds and hearts.

When we heard the heartbreaking news of Cal's passing, I decided to run the Philadelphia Marathon in Cal's memory.  Please consider donating to this incredible cause."


-Kim

Where your support goes:

Travel Grant Program $25

$25 per month will fund a travel grant for a family to see a specialist in the US or abroad.

Donate

Care Package Program $50

$50 per month for one year could provide care packages to five families facing an MLD diagnosis.

Donate

Psychosocial Support $100

$100 per month can help families get access to specialized counseling from a rare disease psychologist.

Donate

Accelerating Diagnostics $500

Support our efforts for newborn screening and improved diagnostics to be sure patients receive an MLD diagnosis in time to get life-changing and life-saving treatments.

Donate

Thanks for your support!

It means the world.

L

Lynn Nezin donated $26.25

2 years ago
J

Jaymie Sadonis donated $26.25

3 years ago
L

Lynn Nezin donated $26.25

Best wishes for a great race for a worthy cause

3 years ago
J

Jennifer Gerney donated $100.00

3 years ago
C

Carrie Zornosa donated $52.50

Go Kim! What a great cause!

3 years ago