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Join us in celebrating the First Annual Nemaline Myopathy Awareness Month!


May is Nemaline Myopathy Awareness Month, culminating in the First Annual Nemaline Myopathy Awareness Day on Friday,  May 31, 2024! Join us as we come together to make a powerful impact on the First Annual Nemaline Awareness Day!


This campaign empowers individuals to create fundraisers supporting Nemaline Myopathy research. Your unique efforts will contribute to the collective strength of our community as we raise funds and awareness on this special day dedicated to NM Awareness. 


We want to help you spread knowledge in the most fun way possible!

Get your FREE NM Awareness Packets filled with:

  • A handy 5x7 info card with quick facts about Nemaline Myopathy and AFBS
  • An adorable sticker sheet to share with friends, family, and everyone in between!
  • These packets are the perfect way to spark conversations and raise awareness about this important cause.

Here's how to get yours (it's super easy!):

1. Become a Champion!  Click "Become a Fundraiser" to set up a fundraiser in your name. Every little bit helps!


2. Fill out the form! Once you've set up your fundraiser, let us know how many packets you need by 
filling out this quick form.


Let's work together to make May a month of NM awareness!



Support a Fundraiser

Top Individuals

View all
View Top Individual - 'Cliff and Linda Davis' fundraiser page using image
Cliff and Linda Davis

Cliff and Linda Davis has raised $45,108 out of their goal of $40,000

$45,108 raised (113%)
View Top Individual - 'Bernadette Handler' fundraiser page using image
Bernadette Handler

Bernadette Handler has raised $32,280 out of their goal of $20,000

$32,280 raised (161%)
View Top Individual - 'Ben Ciliberto' fundraiser page using image
Ben Ciliberto

Ben Ciliberto has raised $23,722 out of their goal of $15,000

$23,722 raised (158%)
View Top Individual - 'Alice & Steve Gens' fundraiser page using image
Alice & Steve Gens

Alice & Steve Gens has raised $11,421 out of their goal of $15,000

$11,421 raised (76%)
View Top Individual - 'Sal and Dina Della Ducata' fundraiser page using image
Sal and Dina Della Ducata

Sal and Dina Della Ducata has raised $10,642 out of their goal of $5,000

$10,642 raised (213%)
View Top Individual - 'Carolyn and Jeff Fogel' fundraiser page using image
Carolyn and Jeff Fogel

Carolyn and Jeff Fogel has raised $6,099 out of their goal of $5,000

$6,099 raised (122%)
View Top Individual - 'Joe Bondi' fundraiser page using image
Joe Bondi

Joe Bondi has raised $5,290 out of their goal of $10,000

$5,290 raised (53%)
View Top Individual - 'Christine Silverman' fundraiser page using image
Christine Silverman

Christine Silverman has raised $4,817 out of their goal of $5,000

$4,817 raised (96%)
View Top Individual - 'Margaret and Ray Mohr' fundraiser page using image
Margaret and Ray Mohr

Margaret and Ray Mohr has raised $3,990 out of their goal of $4,000

$3,990 raised (100%)
View Top Individual - 'Gary Lux' fundraiser page using image
Gary Lux

Gary Lux has raised $3,030 out of their goal of $2,500

$3,030 raised (121%)

Campaign Activity

See who supports your cause and what they have to say about it!

O

Oscar Puga donated $40.00 and generously covered the transaction fee

3 months ago
J

Juliet Zechner donated $20.00

3 months ago
K

Kris Wilson donated $25.00 and generously covered the transaction fee

3 months ago
B

Brooke Bennett donated $60.00

4 months ago
J

Julie Coen-Tower donated $50.00

4 months ago