About the Calliope Joy Foundation

When Pat and Maria Carr's youngest child was diagnosed with leukodystrophy (a degenerative, fatal neurological disease impacting the brain's white matter or myelin) in 2012, it was Cal's older brother who had the idea to sell cupcakes to find a cure for Cal's disease. 


The Calliope Joy Foundation was launched in 2013, and since then, we have been on a mission to provide cures and community to families impacted by leukodystrophy.  


Help us bring life-saving and life-changing treatments to families around the world. 

How To Help

TJ and Tyree's Travel Grant Program $25

Established in honor of TJ and Tyree Herring, two of earliest patients to be seen at the Children's Hospital of Philadelphia's Leukodystrophy Center. This program provides travel grants for eligible families seeking treatment in the US and abroad. For $25 per month, you will fund a travel grant for a family to see a specialist.

Donate

Care Package Program $50

$50 per month for one year could provide care packages to five families facing a leukodystrophy diagnosis.

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Medical Conferences $100

Your donations make it possible to bring together leading researchers from around the globe to collaborate and fast-track breakthroughs that will lead to cures.

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Accelerating Research $500

Your donation will help kickstart research at the Children's Hospital of Philadelphia and other partner centers. Since 2013, Cal has invested $400,000 in research.

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