Alström Angels

Drop By Drop We Make A Lake
  • My Goal:
  • $2,500
  • Raised So Far:
  • $4,275
  • # of Donations:
  • 15
$4275 of $2500 goal
+
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STOP wasting time matching your SOCKS

MATCH your DONATIONS instead!

 

Give a donation to help the Rare Angels fighting Alström Syndrome on #GivingTuesday and your gift will be matched!

 

 

Alström Syndrome is a rare, hereditary genetic disorder first described by doctor Carl Henry Alström in Sweden in 1959.  Since that time, there have been less than 1,000 individuals diagnosed with Alström Syndrome in medical history.  

Alström Syndrome can affect people of all nationalities, ethnic groups and races.  It is caused by a mutated gene called ALMS1

        Children with Alström Syndrome will battle:

        * Nystagmus (wobbly eyes) and photophobia (light sensitivity) in early infancy
        * Progressive vision loss, leading to blindness in childhood 
        * Childhood obesity
        * Mild to moderate hearing loss
        * Normal intelligence—delayed developmental milestones in some
        * Insulin resistance
        * Type 2 diabetes
        * Progressive, chronic kidney failure
        * Congestive heart failure secondary to dilated cardiomyopathy
        * Liver dysfunction and failure
        * High cholesterol / high triglycerides
        * Hypothyroidism
        * Small genitalia in males; female hormonal irregularities 
        * Urological problems
        * Frequent pulmonary infections, asthma and COPD
        * Learning difficulties, possibly due to vision and hearing loss
        * Scoliosis or kyphosis (curvature of the spine)
        * Premature frontal balding in both girls and boys                      
        * Seizures

Alström Syndrome is one of the most brutal diseases there is, as it touches every organ in the body.  Most children are lost in their late teens and early twenties due to these medical complications.

 

Your donation gives these Rare Angels

HOPE for a future that holds a CURE!

 

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Alstrom Angels is fundraising for #GivingTuesdayLBK 2016 benefiting GivingTuesdayLBK.

STOP wasting time matching your SOCKS

MATCH your DONATIONS instead!

 

Give a donation to help the Rare Angels fighting Alström Syndrome on #GivingTuesday and your gift will be matched!

 

 

Alström Syndrome is a rare, hereditary genetic disorder first described by doctor Carl Henry Alström in Sweden in 1959.  Since that time, there have been less than 1,000 individuals diagnosed with Alström Syndrome in medical history.  

Alström Syndrome can affect people of all nationalities, ethnic groups and races.  It is caused by a mutated gene called ALMS1

        Children with Alström Syndrome will battle:

        * Nystagmus (wobbly eyes) and photophobia (light sensitivity) in early infancy
        * Progressive vision loss, leading to blindness in childhood 
        * Childhood obesity
        * Mild to moderate hearing loss
        * Normal intelligence—delayed developmental milestones in some
        * Insulin resistance
        * Type 2 diabetes
        * Progressive, chronic kidney failure
        * Congestive heart failure secondary to dilated cardiomyopathy
        * Liver dysfunction and failure
        * High cholesterol / high triglycerides
        * Hypothyroidism
        * Small genitalia in males; female hormonal irregularities 
        * Urological problems
        * Frequent pulmonary infections, asthma and COPD
        * Learning difficulties, possibly due to vision and hearing loss
        * Scoliosis or kyphosis (curvature of the spine)
        * Premature frontal balding in both girls and boys                      
        * Seizures

Alström Syndrome is one of the most brutal diseases there is, as it touches every organ in the body.  Most children are lost in their late teens and early twenties due to these medical complications.

 

Your donation gives these Rare Angels

HOPE for a future that holds a CURE!

 

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The Campaign:

#GivingTuesdayLBK 2016

Black Friday - Cyber Monday - Giving Tuesday #GivingTuesdayLBK is a day dedicated to bringing We

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GivingTuesdayLBK

#GivingTuesdayLBK is a day dedicated to bringing West Texans together to celebrate generosity & to m...

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